Friday, December 17, 2010

Broken Heart, Two

Today was Lizzy's appointment with the heart surgeon. We left Emma with our friend in Fairfax, and went to meet the surgeon.

First, we had a repeat of the echocardiogram on the nice machine. Lizzy's first echo was on the portable machine, which was fine. The machine in the Fairfax office shows a pretty big detailed colored picture. While Clinton and I watched the technician run the full echocardiogram with fascination, Lizzy watched 2 episodes of Dora the Explorer.

The surgeon brought in a medical resident, because she needed to see an ASD patient. It was fascinating to watch and listen as he explained to her what to look for, what to listen for, and why. He explained why Lizzy's case was typical, and what other symptoms she might see. Then she followed his example and did the same exam. She said she didn't hear one of the sounds he had described, and he carefully explained again, and said what she was listening for was "an absence of silence." He had her use his stethoscope, which is somehow better, and showed her where to position.

Then he explained to her, with us watching, exactly what was happening in doctor phraseology. He quizzed her and explained, being sure that she understood the whole condition. He explained using examples of balloons and pressure and then talked about medical terms that I can't remember. It was fascinating.

When he was satisfied with her understanding, he brought the conversation to us and let us ask our questions. He was cute with Lizzy and had a good mix of humor and serious for Lizzy, the resident, and us. Managed his class pretty well, I'd say.

He explained the procedure, showed us the device that will be used, showed us how it is placed, and let us handle and touch and see his demonstration model. He briefly discussed the history of this heart defect and how it has been treated over the past 50-60 years and what we might expect.

Also, with the fancier in-office echo machine, they discovered that Lizzy has a second heart condition, a Patent Ductus Arteriosus. He explained this to us, as well.

By this time I'm thinking, "OK, cool. Double heart defects, yeah, no big deal."

While the Atrial Septal Defect (ASD) is a hole in the heart that should have knit together and closed at birth, the Patent Ductus Arteriosus (PDA) is a blood vessel in the heart that should have tightened off and closed at birth.

My kid has holes in her heart. The surgeon says we'll get two birds with one stone, or two heart defects with one surgery.

He has done over 670 ASD repairs, and has taught most of the area surgeons that do this procedure. He's been doing them for roughly 15 years, ever since they started doing it with a catheter instead of open-heart surgery.

We'll schedule Lizzy's procedure with his secretary, so depending on her holiday schedule, we'll know when this is happening next week or the following.

3 comments:

Reynolds said...

My goodness! Was Lizzy able to be still through this whole time? It sounds like she's in good hands. We'll be thinking about you guys!

Shelly said...

So many comments are running through my head that I think I've forgotten most of them.

First, if Lizzie watched 2 episodes of Dora, that was a LONG echo. Matt's are usually 20 minutes. Sounds like they were as thorough as possible.

Second, the PDA issue is good to catch now. I've known a couple of adults that discovered theirs and had to have them fixed when they were in their 50s. Not fun. It'll be nice to have the two-for-one deal.

Third, Matt is now six and doesn't remember any of his surgeries, the last one being when he was nearly four. You, as parents, definitely have the rougher end of the ordeal. I pray for you. Always.

Fourth, you have an anomaly surgeon. Every surgeon I've had the pleasure to encounter (including the ones hanging around at work with Josh) have rarely taken the time to come down to the level of ordinary people. For the surgeon to take so much time with the resident, with you, and with Lizzie is astounding and you truly are lucky. Not only that, but to have a teacher/surgeon is a huge relief and comfort. It sounds like you will all be taken care of very well. I'm so happy for that!

Fifth, I find it fascinating to hear the medical side of things too. It's usually the cardiologist talking to Josh and they both use the medical terms and I end up getting the elementary lesson afterward. But you begin to pick up on things and then you feel smart, especially when you can piece things together without spending the years in some sort of medical education.

Please keep us posted on the whens of Lizzie's adventure. And be sure to take pictures of what you can. Sounds stupid, but it's amazing how important it can be later when you look back. I made a photo book for each kid for Christmas and Matt has several pages dedicated to his medical issues. It's really quite amazing to experience again.

Hugs!!!!!

J and L said...

WOW!! We'll be praying for you and little miss Lizzie!!
PS - Jared will attest, there are significant differences in stethoscopes. He's shopping for a new one now... ;)
Much love and prayers!!